A new website providing essential information about the oral health of adults and children living with cystic fibrosis (CF) has been launched.

The resource, which aims to improve dental care for people with CF, was developed following a Health Research Board funded study which explore the oral health challenges faced by individuals with cystic fibrosis.

The project was conducted at University College Cork in collaboration with Cystic Fibrosis Ireland. It had significant input from CF advocates. Dr Niamh Coffey, Senior Lecturer in RCSI's School of Dentistry, was one of the study leads.

During the project, the researchers conducted several clinical studies, including the largest global study on this topic. Their research focused on the oral health of people with CF, the attitudes and knowledge of dental professionals, and the experiences of the CF community in accessing dental care.

Key findings from the study reveal that adults with cystic fibrosis experience more dental decay than individuals without CF. They also tend to have more developmental defects in dental enamel, which can affect the appearance of teeth and increase the risk of dental decay. Additionally, people with CF are more likely to have higher levels of dental plaque and calculus buildup.

The research also identified the potential impact of oral nutritional supplements, with many of these drinks containing high sugar levels. The study recommends that individuals using these supplements alert their dentist, allowing them to recommend additional dental products to prevent damage caused by excessive sugar content.

One particularly important finding concerns patients awaiting organ transplants. The research highlighted the need for individuals to be certified as “dentally fit” by their dentist before being placed on transplant lists, which can present a barrier to accessing timely care if dental diseases such as decay or gum disease are present.

Dr Niamh Coffey, RCSI School of Dentistry, said: “We have developed this online resource to provide practical information about the specific oral health issues experienced by people with CF. Our goal is to empower individuals with cystic fibrosis and their families, as well as dental professionals, with the knowledge they need to better manage and maintain oral health.”

The newly launched website provides comprehensive information including oral health care tips, the relationship between transplants and dental health, the impact of reflux on teeth, inhaled steroids and their effects, and managing candida. The website also includes a special section for parents of children with CF, discussing enamel defects and the role of nutritional supplements in increasing the risk of dental decay.

For more information, please visit oralhealthcf.ie.